Monday, May 21, 2012

Benefit for Bob Grossi in South Pasadena May 30

You Are Invited

To recognize ALS Awareness month and to support Bob Grossi, CARMINE’S RESTAURANT in South Pasadena will host a fundraiser Wednesday, May 30, 2012.

BOB GROSSI spent 40 years in education, as a teacher and administrator. Bob has been recognized by the Department of Catholic Schools as “Principal of the Year,” and has received numerous teaching awards. Most rewarding to him are the literally hundreds of former students who have stayed in touch, and told him he is the teacher who changed their life.

In October, 2007, Bob was diagnosed with ALS. He is currently fed through a tube and dependent on a ventilator to assist him in breathing. He brings life and laughter to visitors and fills his days with joyful memories of family, friends, and students.

For more information:

Did you know?

Every 90 minutes someone is diagnosed with ALS.
Every 90 minutes someone dies as a result of ALS.

ALS does not discriminate – it affects men and women of all ages and all ethnic and socioeconomic backgrounds around the world in nearly equal numbers.

The cost of care for an ALS patient normally exceeds $200,000 per year.

There is a cure for ALS; we just have not found it yet.

For more information:

If you don’t know Bob but had a teacher who touched your life in a special way, please honor that educator by supporting Bob. If you or someone you know has been affected by ALS, please support them through Bob. You can also just participate for the great food, live entertainment, and good feeling one gets when helping others.

CARMINE’S is located at 424 Fair Oaks Ave. South Pasadena, just north of the 110 freeway. Telephone is 626-799-2266. You can participate at lunch (11 am – 2 pm, last delivery 1:30) or dinner (5 pm – 10 pm, last delivery 9:00); you can dine in, takeout, or request delivery. BE SURE TO MENTION BOB GROSSI AT THE TIME OF ORDERING

For more information:

About ALS

Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease
is a fatal neurodegenerative disease.
Currently, there is little known about the causes of ALS, and there is no known cure.

People with ALS become paralyzed when the motor neuron cells in their brain and spinal cord die.
As the disease progresses, ALS robs a person of the ability to swallow, speak, move, and breathe –
all while the mind and senses continue to function.

The average life expectancy of a person with ALS is two to five years from the time of onset/diagnosis.

Every 90 minutes, someone is diagnosed with ALS.
Every 90 minutes, someone dies as a result of ALS.

ALS does not discriminate – it affects men and women of all ages
and all ethnic and all socioeconomic communities around the world nearly equally.

Most people who develop ALS are between the ages of 40 to 70.
However, anyone at nearly any age can have ALS.

The risk of dying from ALS can be as high as 1 in 800 for adults over 40.
Veterans are diagnosed with ALS nearly twice as often as the general population.

ALS is not contagious.
Approximately 10% of the people with ALS have the hereditary form of the disease.

Almost all patients remain at home throughout the course of the disease
and managing the progression of ALS is emotionally, physically and financially draining.
The annual costs for home care, coupled with the cost of necessary equipment
(including speech, mobility, transportation, etc.) can exceed $200,000 per year.

There is a cure for ALS; we just have not found it yet. With your help, we will.

About The ALS Association Golden West Chapter

The mission of The ALS Association Golden West Chapter is to lead the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s disease and their families to live fuller lives by providing them with compassionate care and support.
The Chapter’s primary goals are:
To provide every person with ALS with opportunity to access to the best coordinated medical care, as well as to offer crucial social and emotional support – all at no cost.
To support global, cutting-edge research and support the California ALS research community in their efforts to improve and expand ALS research outcomes.
To lead the effort to generate awareness and promote public policy that directly benefits people with ALS and their families now, and in the future.

The Chapter serves more than 1,000 people with ALS each year and offers a variety of care services in 31 counties to reduce the challenges of living with ALS including: care management, resources for home health care, regional satellite clinics, support groups, education programs, veteran’s benefits, caregiver support, loans of durable medical equipment and augmentative communication devices. The Chapter’s regional care managers also help with referrals to diverse community resources.

The Chapter promotes the American Academy of Neurology (AAN) Practice Parameters, an evidence-based report identifying the most effective treatments for ALS. In addition to the use of Riluzole, the only FDA approved drug for ALS, research shows that people with ALS who access specialized multidisciplinary ALS clinics may increase their quality of life as well as longevity.

The Chapter supports two ALS Association Certified Centers of Excellence for ALS Care in California at The ALS Treatment and Research Center at UCSF and the Forbes Norris ALS Treatment and Research Center at CPMC in San Francisco. We also work with specialty clinics for ALS Care located at Cedar-Sinai Medical Center, at Loma Linda University Health Care, UCSF Fresno, a UCSF satellite clinic in Monterey and several Kaiser locations as well as Veterans Administration facilities throughout the state.

The Golden West Chapter relies on the generosity of individuals, corporations, philanthropic foundations to meet patient needs. $0.76 of every dollar raised by the Chapter directly supports our program services.

There is a cure for ALS; we just have not found it yet. With your help, we will.

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